- Phone: +39 338 451 7154
- Email: ilsorrisonegliocchidirichi@gmail.com
At Il sorriso negli occhi di Richi we believe that a unique disease requires the development of a unique discourse model to promote the discovery of a cure. Our premise is that the solutions for the healing of our children can be found at the connection between different disciplines of knowledge. Our task is to create the right connections to find them. To this end, we promote scientific-medical-technological cooperation. We aim at reprocessing already existing medicines and medical technologies and connect the scientist with the doctor, that is, scientific discoveries and the symptoms of a disease.
During the ‘journey’ I took with my son, from the first symptoms to the diagnosis many years later, I experienced the barrier that exists between different bodies of knowledge, science and medicine; the correlative slowness of science in finding cures and therapies; the gap between technological achievements in fields such as gaming, military and space compared to its application in medicine. The Smile in Richi's Eyes was founded in order to bring all these elements into complementary function.
We believe that an interdisciplinary and creative advisory group consisting of researchers and professionals from fields such as genetics, neurology, metabolism and biology, along with less obvious disciplines such as behavioral sciences, zoology, cancer research, geriatrics, music and even electronics and computer science - can foster much-needed innovation for both rare and common diseases (such as Parkinson's and Alzheimer’s).
Discoveries regarding specific syndromes can contribute to the general understanding of diseases and symptoms. Many of these are not specific to degenerative diseases such as insomnia, weight problems, etc. The interdisciplinary dialogue model can be a ‘turning point’ in terms of diagnosis, treatment, and channeling of resources. These forums could also explore treatment options that are not specific to the genetic syndrome but can influence the course of the disease, symptoms, and quality of life.
The sustainability of our activity depends on the contribution of each donor who allows us to finance research and to give continuity to our commitment to children affected by rare diseases.
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